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  2. Learn More About Sickle Cell Disease & Sign Up For Updates. Understand The Complications & Common Problems Associated With SCD.

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  1. 4 days ago · In real life, sickle cell disease is an inherited blood disorder that impacts hemoglobin – a substance that helps the blood transport oxygen around the body. Ordinarily, red blood cells are circular with a partial indentation at the center – a shape that allows them to pass through the body's blood vessels smoothly.

  2. 5 days ago · Dismantling cost and infrastructure barriers to equitable access to gene therapies for sickle cell disease. Sickle cell disease is the most prevalent genetic disease in the world. In 2023, a Lancet Haematology Commission made 12 key recommendations for improving outcomes for people with sickle cell disease globally.

  3. 4 days ago · Thematic analysis resulted in 3 themes: 1. Discomfort caring for patients with SCD. 2. Challenges managing complications of SCD, and 3. Desire for SCD specific education. Patient care challenges included the complexity of managing SCD complications, limited evidence to guide practice, and healthcare bias.

  4. 4 days ago · McGill shared a touching story from her 80th birthday gathering about a 5-year-old girl with sickle cell disease who underwent a groundbreaking gene therapy treatment involving stem cells from...

  5. 5 days ago · On July 1, four new laws go into effect that directly impact those living with sickle cell disease and those who are unaware that they may have the disease and/or be a carrier of the trait.

  6. 3 days ago · Sickle cell disease is a hereditary disease seen most often among people of African ancestry. Caused by mutations in one of the genes that encode the hemoglobin protein, the disease is inherited as an autosomal recessive trait.

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  8. 3 days ago · Sickle cell is an inherited blood disorder which largely affects the Black community, specifically those with an African or Caribbean background. In the UK alone, around 300 babies are born with sickle cell every year.

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