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A scoping review was conducted to systematically map the research on children with medical complexity and children and youth with special health care needs (CYSHCN) surrounding health equity. Fifteen articles were reviewed with focus on: access to care, quality of life and well-being, and insurance challenges/financing. Findings suggest CYSHCN require more and different types of services than ...
Introduction. Children with special health care needs are defined as “. . . those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally” (McPherson, 1998).
Jun 1, 2022 · The receipt of comprehensive, high-quality services in a well-functioning system of care is assessed using 34 separate survey items which comprise 5 to 6 core outcomes, depending on the child’s age: (1) families are partners in decision-making; (2) medical home access; (3) early and continuous screening for special health care needs (operationalized through receipt of preventive health care ...
- What Is Meant by 'Hospital-Based Comprehensive Care Models' ?
- Why Did We Do This Study?
- What Was done?
- What Did We find?
- What's Next?
Programmatic models for CSHCN can be divided into: 1. those with a primary focus on care coordination in the community, and 2. those with a primary focus of care coordination in a specialized institution, usually a hospital. A number of community-based models have been described, including the Medical Home, 4, 5, 6 hospital-to-medical home transiti...
Comprehensive hospital-based programs for CSHCN aim to: 1. streamline care, 2. improve health outcomes, and 3. support families and primary care providers. However, we still know very little about the impact of hospital-based programs that are meant to provide comprehensive care for CSHCN.
We conducted a systematic review of the published literature. A systematic review involves finding and reviewing all the articles in which people report what they have been studying in order to look for patterns. The literature search yielded 2621 potential titles and abstracts. Of these 35 articles reporting on 33 unique programs were included in ...
The evidence showing that comprehensive hospital-based programs improve the quality of care for CSHCN is generally positive; however, it is limited primarily to studies of children with specific conditions (e.g. single disease) rather than to groups of children who have many different and complex health problems. Also, most of the studies did not m...
In recent years, there have been important developments in clinical care for CSHCN including: 1. The emergence of hospital-based programs for special populations of CSHCN; 2. Controversy about whether community-based or hospital-based providers are better at leading the care of a variety of chronic conditions of childhood; 3. Challenges about how t...
Children and youth with complex care needs are among the most vulnerable populations served by our health and social care systems. Life-saving interventions and advances in medical technology enable children with complex care needs to live well into adulthood and beyond. The often-complicated health and social systems require parents and other ...
Children with special health care needs (CSHCN) are those “who have or are at increased risk of a chronic physical, developmental, behavioral, or emotional condition and who also require health care and related services of a type or amount beyond that required by children generally.” 1(p2749) This is the most commonly used definition of childhood chronic disease in the literature.
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Aug 9, 2023 · One in five (20 %) kids living in the United States — more than 14. 5 million children total — has special health care needs, according to the National Survey of Children’s Health. Children within this group are more likely to experience chronic physical, developmental, behavioral or emotional ...
