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Sep 1, 2022 · 1. INTRODUCTION. Dementia is an increasingly prevalent terminal illness that cannot be prevented or cured. Estimated to reach 152 million people by 2050, it is a public health priority with huge financial costs—the United States spent >$800 billion on dementia care globally in 2015, and that number is expected to rise. 1 Dementia leaves many people unable to care for themselves, which ...
- Faith-Based Organizations Can Support Dementia Caregivers in ...
Building dementia-friendly faith-based communities should be...
- Faith-Based Organizations Can Support Dementia Caregivers in ...
- Abstract
- Method
- Results
- Discussion
- Conclusion
- Acknowledgments
Spiritual care seeks to uphold the spiritual well-being of individuals and to address spiritual concerns such as suffering and loss (Puchalski et al., 2019). Within the health care field, spiritual care’s role is fortified by its inclusion in palliative care for those with serious illness (National Consensus Project for Quality Palliative Care, 201...
Overview
Both Hebrew SeniorLife’s Institutional Review Board (IRB; the IRB of record during data collection and data coding) and VA Boston Healthcare System’s IRB (the IRB of record during subsequent analysis of de-identified data) ruled this qualitative study protocol to be of minimal risk and thus exempt from further IRB review. The latter organization’s Research and Development Committee, however, maintained oversight of the protocol.
Setting and Participants
Interview participants were health care providers recruited from a variety of community-based (e.g., adult day center, outpatient memory care clinic, independent housing) and long-term care (e.g., assisted living facility, continuing care retirement community) settings in the Greater Boston area. Participants were eligible for the study if they worked directly with persons living with dementia and were eligible even if they did not report having a spiritual or religious affiliation. We purpos...
Data Collection
The first author (J. A. Palmer), an experienced doctoral-level health services researcher, conducted this study’s semistructured qualitative interviews over a 4.5-month period (April to September, 2019). All interviews but one occurred in-person in a private location chosen by the participant. The exception was an interview held over the telephone. Mean interview duration was 40 min (range: 22–59 min). Interview sessions began with participants completing a brief demographics form. Subsequent...
Twenty-four providers (10 chaplains, six nursing staff members, six social workers, and two activities professionals) participated in interviews. All participants were Caucasian, and the majority were female, had graduate degrees, worked in long-term care settings, and had worked in their profession for more than 20 years. Data confirm that 23 of t...
This study qualitatively explores salient spiritual needs in dementia from the perspective of health care providers. The emergent themes and subthemes shed light on several types of intervention implications: the “what,” “who,” and “when” of dementia-focused spiritual care (see Table 3for the thematic structure with types of intervention implicatio...
This qualitative study gathered health care providers’ views on salient spiritual needs in dementia. We found that the salient elements of spiritual experience in dementia are hard for individuals to mitigate independently and that spiritual distress may be particularly salient with self-awareness, making early stages of dementia a vital time to in...
In the data collection and data coding phases of this study, Jennifer Palmer was employed at the Hinda and Arthur Marcus Institute for Aging Research, Hebrew SeniorLife. We would like to acknowledge the invaluable contributions to the study by Jodie Gruen, Research Assistant at the Hinda and Arthur Marcus Institute for Aging Research, Hebrew Senior...
Apr 1, 2023 · As the 2022 Caregiving Strategy (Administration of Community Living, 2022) mentioned, faith-based organizations are taking a role; it is time to partner with religious organizations, such as churches, temples, synagogues, and mosques, to establish dementia-friendly services and resources to support aging adults to continue their established coping practices for as long as possible. As ...
Literature documents positive effects of religion and spirituality on health including improved cognitive function, quality of life, and well-being. Extant research suggests that persons living with dementia (PWD) are more likely to have spiritual needs and rely on others to support their spiritual well-being than those without dementia.
Building dementia-friendly faith-based communities should be a priority to meet the aging population’s needs, providing resources and health education (Fleming et al., 2017), especially among historically marginalized communities. In order to address known health disparities among socially marginalized populations, it is a public health imperative to provide awareness, education, resources ...
Aug 30, 2023 · When you add up the good work of local churches and people of faith working in the sector, the Christian response to dementia is widespread and inspiring. We have excellent theological foundations for taking a lead in this area, especially when you look at the repeated call of the Old Testament prophets to care for the vulnerable, or in biblical language, the widows, orphans and strangers (see ...
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The findings highlight the benefits of spirituality and religion on health outcomes. Three articles showed that in participants who used their spirituality or religion more, through their faith, their practices and in maintaining social interactions, their cognitive disorders tended to reduce or stabilize.
