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May 4, 2023 · 1. Introduction. Dementia results from primary and secondary effects on the brain from various diseases and injuries such as Alzheimer’s disease or stroke [].One of the significant causes of disability among older adults, dementia is the seventh leading cause of death among all diseases and has been declared a global public health priority [].
- 10.3390/healthcare11091319
- 2023/05
- Healthcare (Basel). 2023 May; 11(9): 1319.
Apr 1, 2023 · The potential impact on caregiving burden could be substantial, as dementia caregivers report twice as many emotional, physical, and financial problems compared to caregivers of persons without dementia (Alzheimer's Association, 2021). We need to create more interventions supporting the religion and spirituality practices of older adults as they age, begin to have cognitive impairment, and ...
Sep 1, 2022 · 1. INTRODUCTION. Dementia is an increasingly prevalent terminal illness that cannot be prevented or cured. Estimated to reach 152 million people by 2050, it is a public health priority with huge financial costs—the United States spent >$800 billion on dementia care globally in 2015, and that number is expected to rise. 1 Dementia leaves many people unable to care for themselves, which ...
- 10.1002/trc2.12352
- 2022
- Alzheimers Dement (N Y). 2022; 8(1): e12352.
- Abstract
- Method
- Results
- Discussion
- Conclusion
- Acknowledgments
Spiritual care seeks to uphold the spiritual well-being of individuals and to address spiritual concerns such as suffering and loss (Puchalski et al., 2019). Within the health care field, spiritual care’s role is fortified by its inclusion in palliative care for those with serious illness (National Consensus Project for Quality Palliative Care, 201...
Overview
Both Hebrew SeniorLife’s Institutional Review Board (IRB; the IRB of record during data collection and data coding) and VA Boston Healthcare System’s IRB (the IRB of record during subsequent analysis of de-identified data) ruled this qualitative study protocol to be of minimal risk and thus exempt from further IRB review. The latter organization’s Research and Development Committee, however, maintained oversight of the protocol.
Setting and Participants
Interview participants were health care providers recruited from a variety of community-based (e.g., adult day center, outpatient memory care clinic, independent housing) and long-term care (e.g., assisted living facility, continuing care retirement community) settings in the Greater Boston area. Participants were eligible for the study if they worked directly with persons living with dementia and were eligible even if they did not report having a spiritual or religious affiliation. We purpos...
Data Collection
The first author (J. A. Palmer), an experienced doctoral-level health services researcher, conducted this study’s semistructured qualitative interviews over a 4.5-month period (April to September, 2019). All interviews but one occurred in-person in a private location chosen by the participant. The exception was an interview held over the telephone. Mean interview duration was 40 min (range: 22–59 min). Interview sessions began with participants completing a brief demographics form. Subsequent...
Twenty-four providers (10 chaplains, six nursing staff members, six social workers, and two activities professionals) participated in interviews. All participants were Caucasian, and the majority were female, had graduate degrees, worked in long-term care settings, and had worked in their profession for more than 20 years. Data confirm that 23 of t...
This study qualitatively explores salient spiritual needs in dementia from the perspective of health care providers. The emergent themes and subthemes shed light on several types of intervention implications: the “what,” “who,” and “when” of dementia-focused spiritual care (see Table 3for the thematic structure with types of intervention implicatio...
This qualitative study gathered health care providers’ views on salient spiritual needs in dementia. We found that the salient elements of spiritual experience in dementia are hard for individuals to mitigate independently and that spiritual distress may be particularly salient with self-awareness, making early stages of dementia a vital time to in...
In the data collection and data coding phases of this study, Jennifer Palmer was employed at the Hinda and Arthur Marcus Institute for Aging Research, Hebrew SeniorLife. We would like to acknowledge the invaluable contributions to the study by Jodie Gruen, Research Assistant at the Hinda and Arthur Marcus Institute for Aging Research, Hebrew Senior...
Religious and spiritual issues are clearly important to the older adult population and may play a positive role in maintaining health and recovering from illness. This study systematically reviewed the literature examining the effects of religion and spirituality on health outcomes such as cognitive functioning, coping strategies, and quality of life in people with dementia.
- Océane Agli, Nathalie Bailly, Claude Ferrand
- 2015
Sep 1, 2022 · Literature on the association of religion and spirituality (R/S) and health is growing. However, it is unclear how R/S affects outcomes and is assessed in persons with dementia (PWDs). In this integrative review, we evaluate published R/S measures and synthesize R/S findings for PWDs. Methods
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Nov 7, 2023 · Reflective interviews with chaplains, case managers and health psychologists identified frequently occurring existential and spiritual issues of clients and family members. A core participatory group consisting of chaplains, a psychologist and a researcher further analysed these issues thematically and co-developed the Diamond model for early stage dementia over three co-creation sessions.
