Search results
Another way to say Rare Disease? Synonyms for Rare Disease (other words and phrases for Rare Disease).
- Log in
Another way to say Rare Disease? Synonyms for Rare Disease...
- Log in
Rare diseases, also known as orphan diseases, refer to a diverse group of medical conditions that can affect various organ systems and have wide-ranging impacts on individuals’ physical and mental well-being.
Orphanet provides a comprehensive list of all rare diseases registered in the Orphanet database, published annually.
Search for detailed information on rare diseases, including NORD's authoritative Rare Disease Reports and data from other reliable sources. Interested in exploring the database in detail? Click here to explore the database in alphabetical order. What Is the NORD ® Rare Disease Database?
- Costs of Misdiagnosis
- Efforts to Improve The Journey
- Finding Support For The Journey
During their journey, people may undergo unnecessary tests and surgeries and take medicines that do not help. Rare conditions often affect multiple organs and cause life-threatening symptoms, leading to missed school and work. Studies show that rare diseases are significantly more expensive than common health conditions. In fact, 1 study found rare...
An international group focused on rare diseases made 5 recommendations aimed at improving diagnosis rates. These recommendations include:3 1. Recognize people with undiagnosed rare diseases as a distinct group with unmet needs 2. Create long-term national programs dedicated to speeding up and improving rare disease diagnosis and social support 3. C...
If you or a loved one is living with a rare health condition, you are not alone. In fact, 1 in 10 people in the United States, or 30 million people, are currently living with 1 of 7,000 known rare conditions. Estimates say that 400 million people around the world have a rare disease. If you need support during your journey, there are organizations ...
Sep 13, 2024 · Many people use the terms “orphan disease” and “rare disease” interchangeably. But there’s a slight difference. Orphan diseases are diseases (including rare ones) that researchers aren’t investigating much, or at all.
People also ask
What is a rare disease?
What is a rare disease example?
Where can I find information about rare diseases?
How common is a rare disease?
Are You living with a rare health condition?
What is a non rare disease?
The European Union defines a rare disease as one that impacts fewer than 1 in 2,000 people. 1 So far, doctors have found about 7,000 known rare diseases worldwide. Some have been known for hundreds of years, like cystic fibrosis and hemophilia.
