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Consent process. For research with humans to be considered ethical, it is essential that participants provide their free, informed and ongoing consent. Research can begin only after the participants have provided their initial consent, and individuals must have the possibility to withdraw their consent at any point during the research project.
The first relates to the written and oral process for obtaining assent and permission for research participation from children and their parents, guardians, or other legally authorized representatives. 1 The second involves an examination of children's and parent's expectations and comprehension of the direct benefits and risks associated with a...
- Marilyn J Field, Richard E Behrman
- 2004
- 2004
Researchers may request an alteration to consent requirements if they can meet the criteria of Article 3.7A. These include a requirement to satisfy the research ethics board (REB) that it is impossible, impracticable (see Glossary) or inappropriate to address the research question without the requested alteration.
In general, one or both parents or a guardian must be provided with the information ordinarily required for informed consent, so that they may decide whether to allow the child to participate, and children capable of assent must also express their willingness to participate.
The objective of this analysis was to examine ethical issues in research with children and adolescents from their perspective as participants, including: assent, parental consent, risk perception, impact of research participation, and incentives. Methods.
The REB is increasingly open to allow children between the ages of 12 and 17 to consent on their own behalf for research projects which inquire into subjects over which an individual of that has agency to decide.
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Research with children: ethics, safety and promoting inclusion. Guidance about managing the risk of harm, obtaining informed consent and what researchers should do if they have concerns about a child. Publication date January 2023. Conducting research with children can help us understand what they think about the issues that affect them.
