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Sep 24, 2023 · Additionally, nurses and other medical staff must understand the unique hospital experiences and challenges of autistic patients to improve care and facilitate better hospital experiences. This review further highlights the crucial need to adopt a collaborative and inclusive approach between autistic patients, their families and healthcare staff.
Nurses and other medical staff must understand the unique hospital experiences and challenges of autistic patients to improve care and facilitate better hospital experiences. Patient or Public ...
- Asd-Specific Techniques in Health Care Settings: Brief Review of Best Practices
- Theoretical Framework
- Study Purpose and Research Question
- Method
- Results
- Discussion
- Limitations
- The Role of Child Life in The Care of Children Who Have ASD
The applied literature is replete with many different techniques and strategies that are helpful in assisting children who have ASD. Although such techniques are often not specifically designed for hospitalized children, they can serve as guidelines for practice and be readily adapted to hospital settings. Although it is the case that the range of ...
This study is grounded in the patient- and family-centered care perspective, as outlined by Thompson (2018) and Rollins et al. (2018). This framework promotes the idea that the health and well-being of children and families is maintained through a respectful family-professional partnership. It honors all members of the relationship and is truly the...
As shown in this review, the challenges that children who have ASD may face in their daily interactions are likely to be heightened in the health care environment. This can make hospitalization experiences exceptionally difficult for children who have ASD and their families. Although a variety of formal and informal techniques to assist children wh...
Participants
Registered nurses and CCLSs working in two different hospitals in a major metropolitan city in the Northeast served as study participants. One hospital was a level one trauma center that features 404 beds and provides comprehensive outpatient care and includes its own autism clinic. The second hospital site was a 128 bed, level one trauma center that additionally offers outpatient services in every medical and surgical specialty. A snowball sampling method was used to recruit participants. Sp...
Procedures and Measures
Individual, face-to-face interviews were conducted with all study participants regarding their experiences in working with children and families who have ASD. Interviews were held in a private setting in each of the hospitals. All interviews were audio-recorded with permission, and transcribed verbatim for analysis. The average interview time with the CCLSs was 39 minutes, with an average transcript length of 19 pages. Interviews with nurses averaged 20 minutes, with an average transcript len...
Qualitative Analyses and Coding
Analysis of interview data followed qualitative content analytic coding procedures. Qualitative content analysis strives to examine meanings, themes, and patterns that may be manifest or latent in a particular text, and codes are generated inductively (Sandelowski, 2000; Zhang & Wildemuth, 2009). In this regard, analysis of all transcripts began with open coding and memoing by the first author to expose the thoughts, meanings, and ideas that were contained in the texts (Charmaz, 2014). Next,...
Qualitative analyses provided important insights into health care professionals’ perspectives on caring for patients who have ASD and their families. Each thematic category was present in the narratives of at least six of the seven participants. Themes are presented below according to their frequency across transcripts. The first three (partner wit...
This study examined the perspectives of child life specialists and nurses meeting the needs of children who have ASD and their families in the health care setting. Although many of the techniques suggested by Straus et al. (2019) and Jolly (2015) were reflected in the narratives of our participants, this study is the first to document what is consi...
A limitation of this study is the small number of participants, all of whom self-selected to participate. As such, our findings cannot represent the perspectives of the larger population of nurses and CCLSs in the country. Although it is argued here that child life specialists and nurses offer key insights into effective practices in serving childr...
Among the many forms of support, we argue the CCLS has potential to play a fundamental role in the support of patients who have ASD in the hospital setting. As highlighted earlier, the education and training that child life specialists receive focuses mainly on child developmental knowledge and the psychosocial effects of hospitalization on the ent...
- Emily Fraatz, Tina M. Durand
- 2021
Therefore, the purpose of this study was to understand these experiences in order to inform hospital-based care. A total of 42 participants were interviewed (youth with autism spectrum disorder, their parents and health-care providers) at one of two Canadian paediatric hospitals, representing 20 distinct cases of patients with autism spectrum disorder.
- Barbara Muskat, Priscilla Burnham Riosa, David B Nicholas, Wendy Roberts, Kevin P Stoddart, Lonnie Z...
- 2015
The desire for visits that do not feel as “rushed” among autistic patients is consistent with patient-oriented outcomes research findings that spending adequate time with patients is a key patient priority. 56 Clinics could address this in a variety of ways, ranging from pre-visit planning to gather information and assist with agenda-setting, 57 to more flexibility with scheduling to allow ...
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Only two studies included autistic individuals and family members in the development and evaluation of interventions. 21,69 While a child’s chronological age may have restricted access to obtaining some patient feedback, the opinions and experiences of autistic individuals and their families in developing interventions was absent. No study examined the racial and ethnic characteristics of ...
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Do hospital experiences inform hospital-based care for children and youth with autism?
Gaps in research knowledge exist regarding patient-provider interactions with individuals with autism in healthcare settings. To address this, a scoping review was conducted focusing on the experiences of healthcare professionals working with individuals with autism. A systematic search and screen of the literature resulted in 27 relevant studies. Six key themes were found across these 27 ...
