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- Registries capture valuable, real-time patient data on an ongoing basis in a real-world setting and expand our knowledge of clinical patterns, processes, disease trajectories, patient outcomes, and delivery of care.
www.heart.org/-/media/Files/About-Us/Policy-Research/Fact-Sheets/Clinical-and-Post-Clinical-Care/Clinical-Registries-Fact-Sheet.pdf
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Mar 4, 2024 · Patient registries can comprise data from clinical standard care practices, patient reported outcomes, or information from electronic medical records. Registries can be used to access richer data that characterize diseases, define a patient population, or provide information on the effectiveness of drugs or devices, among other uses.
Studies derived from well-designed and well-performed patient registries can provide a real-world view of clinical practice, patient outcomes, safety, and clinical, comparative, and cost-effectiveness, and can serve a number of evidence development and decision-making purposes.
- 2020/09
As use of new technology increases in medical practice and clinical research, registries are uniquely positioned to leverage these innovations to support real-world data collection. In particular, digital health is emerging as an important trend.
- 2018/03
Patient registry is an organized system that uses observational study methods to collect clinical and other data to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure and that serves one or more predetermined scientific, clinical, or policy purposes.
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Registries capture valuable, real-time patient data on an ongoing basis in a real-world setting and expand our knowledge of clinical patterns, processes, disease trajectories, patient outcomes, and delivery of care.
Patient registries can serve as a platform to routinely capture more specific clinical patient information across more diverse patient population than RCTs traditionally allow. Data from patient registries may be used to build historic controls for future post hos analyses.
Jul 1, 2016 · Registries can evolve to become patient centred learning systems in which patients, clinicians, and scientists coproduce better health outcomes, improved services, and patient centred research. They can be used to make “dashboards” integrating patient reported and clinical data to support decisions about care.
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