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- Researchers have a duty to provide participants with information about the research they are being asked to participate in, potential risks and benefits, as well as the opportunity to ask questions and give their free and informed consent to participate in research, or to decline to do so.
neac.health.govt.nz/national-ethical-standards/part-two/7-informed-consent
Consent process. For research with humans to be considered ethical, it is essential that participants provide their free, informed and ongoing consent. Research can begin only after the participants have provided their initial consent, and individuals must have the possibility to withdraw their consent at any point during the research project.
Consent encompasses a process that begins with the initial contact (e.g., recruitment) and carries through to the end of participants’ involvement in the project. Throughout the process, researchers have an ongoing duty to provide participants and REBs with all information relevant to participants’ ongoing consent to participate in the ...
As part of the consent process, researchers should provide participants the necessary information for making an informed decision to participate in research ( Article 3.2 ), including an explanation of the responsibilities of participants, and assurances regarding their rights and freedom to withdraw at any time without prejudice to pre-existing...
Individuals conducting research involving human participants must ensure that their participants provide voluntary, informed, and ongoing consent. In some cases, where consent from participants is not applicable (see Section 4 below) researchers must obtain assent from their participants.
In some contexts, researchers may wish, or may have a duty, to share the individual research results with participants (see incidental findings addressed in Article 3.4). In addition, key guidance on disseminating research results to Indigenous communities can be found in Articles 9.11 , 9.17 and 9.22 .
Consent to participate in a research study should be understood as a process rather than an event. Researchers should plan for and articulate the steps by which consent is initially obtained and the steps by which it is reviewed throughout the study.
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Informed consent is the process by which researchers working with human participants describe their research project and obtain the subjects' consent to participate in the research based on the subjects' understanding of the project's methods and goals.
