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- Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization.
pubmed.ncbi.nlm.nih.gov/24945055/Registries for Evaluating Patient Outcomes: A User's Guide ...
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What are the different types of patient registries?
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Patients in a registry are typically selected based on a particular disease, condition (e.g., a risk factor), or exposure. This User’s Guide uses these common selection criteria to develop a taxonomy or classification based on how the populations for registries are defined.
- 2020/09
Oct 22, 2024 · How is a registry different from a clinical trial? Registries focused on specific diseases or conditions collect information voluntarily from people with those conditions. Clinical trials registries collect basic health information from people who agree to be contacted about participating in future clinical trials or studies.
Oct 12, 2012 · Inclusion of all types of patient registries is important to achieve RoPR's goals, and the system therefore defines patient registries broadly. In contrast to RoPR, this user's guide focuses on the subset of patient registries used for evaluating patient outcomes, defined as follows:
- 2014/04
- Fourth Edition
- Defining Patient Registries
- Planning a Registry
- Registry Design
- Selecting and Defining Outcome Measures for Registries
- Data Elements
- Data Sources
- Ethics, Data Ownership, and Privacy
- Informed Consent for Registries
- Registry Governance
- Patient and Provider Recruitment and Management
- Obtaining Data and Quality Assurance
- Adverse Event Detection, Processing, and Reporting
- Analysis, Interpretation, and Reporting of Registry Data
- Evaluating Registries
- 1. Introduction
- 2. Current Uses for Patient Registries
- 2.1 Evaluating Patient Outcomes
- 2.4.3 Measuring or Monitoring Safety and Harm
- 2.4.4 Measuring Quality
- 2.4.5 Multiple Purposes
- 3. Taxonomy for Patient Registries
- 3.1 Product Registries
- 3.2 Health Services Registries
- 3.3 Disease or Condition Registries
- 3.4 Combinations
- 3.5 Duration of Observation
- 4. Patient Registries and Policy Purposes
- 6. Future of Registries
- 7. Summary
- 1. Introduction
- 2.1 Articulate the Registry’s Purpose
- 2.2 Determine if a Registry Is an Appropriate Means To Achieve the Purpose
- 2.3 Identify Key Stakeholders
- 2.4 Assess Feasibility
- 2.5 Build a Registry Team
- 2.6 Establish a Governance and Oversight Plan
- 2.7.1 Scope of Data
- 2.7.2 When Data Need To Be Available for Analysis
- 2.7.3 Scientific Rigor
- 2.8.1 Core Dataset
- 2.8.2 Patient Outcomes
- 2.8.4 Target Population
- 2.10 Develop a Project Plan
- 3. Anticipating and Preparing for Changeii
- 4.1 Rare Disease Registriesiii
- 4.2 Quality Improvement Registriesiv
- 5. Resources for Registries
- 6. Summary
- Proposed Solution
- Key Point
- Key Point
- Proposed Solution
- Key Point
- Key Point
- 1. Introduction
- 2. Research Questions Appropriate for Registries
- 3. Translating Clinical Questions Into Measurable Exposures and Outcomes
- 4. Finding the Necessary Data
- 5. Resources and Efficiency
- 6. Study Designs for Registries
- 6.1 Case Series Design
- 6.2 Cohort Design
- 6.3 Case-Control Design
- 6.4 Case-Cohort Design
- 7.1 Target Population
- 7.2 Comparison Groups
- 8. Registry Size and Duration
- 9. Internal and External Validity
- 9.2 Information Bias
- 9.3 Selection Bias
- 9.4 Channeling Bias (Confounding by Indication)
- 9.5 Bias From Study of Existing Rather Than New Product Users
- 9.6 Loss to Followup
- 9.7 Assessing the Magnitude and Impact of Bias
- 10. Special Considerations
- 10.1 Designing Registries for Product Safety Assessmenti
- 10.3 Designing Registries for Rare Diseaseiii
- 10.4 Designing Pregnancy Registriesiv
- 10.5 Designing Quality Improvement Registriesv
- 10.6 Designing Multinational Registries
- 11. Summary
- Key Point
- Challenge
- Proposed Solution
- Key Point
- Proposed Solution
- Key Point
- Challenge
- Key Point
- 1. Introduction
- 2.2 Structure of the Outcome Measures Framework
- 3. Types of Outcome Measures
- 3.1 Survival Measures
- 3.2 Clinical Response or Status
- 3.3 Events of Interest
- 3.4 Patient-Reported Outcomes
- 3.5 Resource Utilization
- 4. Selecting Patient-Reported Outcomesi
- 5.2 OMF Standardized Measures
- 6. Conclusions
- Challenge
- Results
- Key Point
- Challenge
- Key Point
- 1. Introduction
- 2. Identifying Domains
- 3. Selecting Data Elements
- 3.1 Data Standards
- 3.2 Enrollment and Followup Data Elements
- 3.3 Data Definitions
- 3.4 Patient Identifiers
- 3.5 Multinational Registries
- 5. Pilot Testing
- 6. Summary
- Challenge
- Proposed Solution
- Key Point
- Challenge
- Proposed Solution
- Key Point
- For More Information
- 1. Introduction
- 2. Intended Uses for Data Elements
- 3. Types of Data
- 4. Data Sources
- 6. Summary
- Challenge
- Key Point
- Proposed Solution
- Results
- Key Point
- Challenge
- Proposed Solution
- Results
- Key Point
- For More Information
- 1. Introduction
- Waiver of Authorization, Documentation of Consent, or Consent Process
- 2.2 Transformation of Ethical Concerns Into Legal Requirements
- 3. Applicable Regulations
- 3.1 Public Health, FDA-Regulated Products, Health Oversight
- 3.2 Distinguishing Research Activities From Quality Assurance/Improvement Activities
- 3.3 Potential for Individual Patient Identification
- 3.3.5 Waivers and Alterations of Authorization and Consent
- 4.1 Registry Transparency
- 4.2 Registry Oversight
- 4.3.1 Health Information Ownership and Value Proposition
- 4.3.2 Publications
- 5. Conclusions
- 1. Introduction
- 2.1 Registry Research Versus Clinical Research
- 2.2 Public Health Activities
- 3.1 Electronic Health Records and other Health Information Databases
- 3.2 Changing Ethics in the Context of Database Research
- 4. Regulatory Consent Requirements
- 4.2 Consent for Databank and Biobank Research
- 4.3 Format and Documentation of Consent
- 4.4 Informed Consent Form Revisions and Re-consent
- 4.5 HIPAA
- 4.6 Special Consent Issues: Incapacitated Adults and Children
- 5.1 Current Practices and Problems
- 5.1.2 The Opt-Out Approach
- 5.1.3 The Non-Consent Approach
- 5.2 Scope of Consent
- 5.3 Oversight and Community Consultation
- 6. Consent Guidance
- 6.1 Scope of Use of Registry Data
- 6.2 Recontact
- 6.3 Withdrawal
- 6.4 Electronic Data Security
- 6.5 Proposed Consent Form Elements
- Key Point
- Challenge
- Proposed Solution
- Key Point
- Proposed Solution
- Results
- Key Point
- 1. Introduction
- 2. Governance Roles
- 3.1 Governing Strategy
- 3.3 Committee Operations
- 3.4 Governance in Change Management
- Chapter 9. Registry Governance
- 4.2 Public-Private Partnershipsii
- Proposed Solution
- Key Point
- Key Point
- 1. Introduction
- 2. Recruitment
- 2.1 Hospital Recruitment
- 2.2 Physician Recruitment
- 2.3 Vetting Potential Participants
- 2.4 Patient Recruitment
- 2.5 Partnerships To Facilitate Recruitment
- 3.1 Providers
- 3.2 Patients
- 4. Pitfalls in Recruitment and Retention
- Challenge
- Proposed Solution
- Key Point
- Challenge
- Proposed Solution
- Results
- Key Point
- 2.1 Database Requirements and Case Report Forms
- 2.2 Procedures and Personnel
- 2.2.1 Pilot Testing
- 2.2.2 Documentation of Procedures
- 2.2.3 Personnel
- 2.3 Data Sources
- 2.3.1 Primary Data Collection
- 2.3.2 Secondary Sources
- 2.3.2.1 Manual Abstraction
- 2.3.2.2 Direct Import
- 2.3.2.3 Transformation
- 2.3.2.4 Computational Derivation
- 2.4 Data Entry Systems
- 2.4.1 Paper CRFs
- 2.4.2 Electronic CRFs
- 2.4.3 Electronic Upload
- 2.5 Cleaning Data
- 2.5.1 Data Management Manual
- 2.5.2 Automated Data Cleaning
- 2.5.3 Manual Data Cleaning
- 2.5.4 Query Reports
- 2.5.5 Data Tracking
- 2.5.6 Coding Data
- 2.5.7 Storing and Securing Data
- 2.6 Managing Change
- 3.1 Assurance of Data Quality
- 3.1.1 A Designated Individual Accountable for Data Quality at Each Site
- 3.1.2 Assessment of Training and Maintenance of Competency of Personnel
- 3.1.3 Data Quality Audits
- 3.2.1 External Audits of Registry Procedures
- 3.2.3 System Development and Validation
- 3.3 Security
- 3.3.1 System Security Plan
- 3.3.2 Security Assessment
- 3.3.3 Education and Training
- 3.3.4 Access Rights
- 3.3.5 Access Controls
- 1. Introduction
- 2. Identifying and Reporting Adverse Drug Events
- 3. Collecting AE Data in a Registry
- 4. AE Reporting by the Registry
- 5. Coding
- 6. Adverse Event Management
- 1. Introduction
- 2. Research Questions and Registry Purposes
- 3. Patient Population
- 4. Data Quality
- 4.1 Collection of Important Covariates
- 4.2 Definition of Analytic Variables
- 4.3 Data Completeness and Curation
- 4.4 Data Accuracy and Validation
- 5.1 Factors To Consider in the Analysis
- 5.2.1 Need for a Statistical Analysis Plan
- 5.2.2 Preliminary Descriptive Analysis To Assist SAP Development
- 5.3 Timing of Analyses During the Study
- 5.3.1 Patient Censoring
- 5.4.1.2 Threats From the Left: Truncation
- 5.4.1.4 Data Gaps in Secondary Data Sources
- 5.4.2 Analytic Implications and Management Strategies for Missing Data
- 5.4.2.1 Complete Case Strategy
- 5.4.2.2 Single and Multiple Imputation
- 5.4.2.3 Maximum Likelihood Methods
- 6. Interpretation and Reporting of Registry Data
- 7. Summary
- Challenge
- Proposed Solution
- Results
- Key Point
- Challenge
- Results
- Key Point
- Key Point
- 1. Introduction
- 3. Measuring Quality
- Contributors
Registries for Evaluating Patient Outcomes: A User’s Guide
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to eva...
There are several key steps in planning a patient registry, including articulating its purpose, determining whether it is an appropriate means of addressing the research question, identifying stakeholders, defining the scope and target population, assessing feasibility, and securing funding. The registry team and advisors should be selected based o...
A patient registry should be designed with respect to its major purpose, with the understanding that different levels of rigor may be required for registries designed to address focused analytical questions to support decision making, in contrast to registries intended primarily for descriptive purposes. The key points to consider in designing a re...
The selection and definition of patient outcomes of interest is a critical step in designing a patient registry. The outcomes of interest, together with the exposures(s) of interest, drive many of the decisions regarding the study duration, the necessary data elements, and the source(s) of the data. Outcomes should be selected primarily based on th...
The selection of data elements requires balancing such factors as their importance for the integrity of the registry and for the analysis of primary outcomes, their reliability, their contribution to the overall burden for respondents, and the incremental costs associated with their collection. Selection begins with identifying relevant domains. Sp...
A single registry may integrate data from various sources. The form, structure, availability, and timeliness of the required data are important considerations. Data sources can be classified as primary or secondary. Primary data are collected by the registry for its direct purposes. Secondary data have been collected by a secondary source for purpo...
Critical ethical and legal considerations should guide the development and use of patient registries. The Common Rule is the uniform set of regulations on the ethical conduct of human subjects research, issued by the Federal agencies that fund such research. Institutions that conduct research agree to comply with the Common Rule for federally funde...
The requirement of informed consent often raises different issues for patient registries versus clinical trials. For example, registries may be used for public health or quality improvement activities, which may not constitute “human subjects research.” Also, registries may integrate data from multiple electronic sources (e.g., claims data, electro...
Registries function in a dynamic environment and are often shaped by the complex relationships among individual health, public health policy, economics, geography, and culture. Complexity within registries stems from the topics being studied, stakeholders with different agendas, and the legal and political climates for such research, among other fa...
Recruitment and retention of patients as registry participants, and of providers as registry sites, are essential to the success of a registry. Recruitment typically occurs at several levels, including facilities (hospitals, physicians’ practices, and pharmacies), providers, and patients. The motivating factors for participation at each level and t...
The integrated system for obtaining, cleaning, storing, monitoring, reviewing, and reporting on registry data determines the utility of those data for meeting the registry’s goals. A broad range of procedures and systems are available for obtaining or collecting data. Some are more suitable than others for particular purposes. Critical factors in t...
The U.S. Food and Drug Administration defines an adverse event (AE) as any untoward medical occurrence in a patient administered a pharmaceutical product, whether or not related to or considered to have a causal relationship with the treatment. AEs are categorized according to the seriousness and, for drugs, the expectedness of the event. Although ...
Analysis and interpretation of registry data begin with answering a series of core questions: Who was studied, and how were they chosen for study? How were the data collected, edited, and verified, and how were missing data handled? How were the analyses performed? Four populations are of interest in describing who was studied: the target populatio...
Although registries can provide useful information, there are levels of rigor that enhance validity and make the information from some registries more useful for guiding decisions. The term “quality” can be applied to registries to describe the confidence that the design, conduct, and analysis of the registry can be shown to protect against bias an...
The purpose of this document is to serve as a guide for the design and use of patient registries for scientific, clinical, and health policy purposes. Properly designed and executed, patient registries can provide a real-world view of clinical practice, patient outcomes, safety, and comparative effectiveness. This User’s Guide primarily focuses on ...
A patient registry can be a powerful tool to observe the course of disease; to understand variations in treatment and outcomes; to examine factors that influence prognosis and quality of life; to describe care patterns, including appropriateness of care and disparities in the delivery of care; to assess effectiveness; to monitor safety and harm; an...
Studies from patient registries and randomized controlled trials (RCTs) have important and complementary roles in evaluating patient outcomes.20 Ideally, patient registries collect data in a comprehensive manner (with few excluded patients) and therefore produce outcome results that may be generalizable to a wide range of patients. They also evalua...
Registries may be created to assess safety versus harm. Safety here refers to the concept of being free from danger or hazard. One goal of registries in this context may be to quantify risk or to attribute it properly. Broadly speaking, patient registries can serve as an active surveillance system for the occurrence of unexpected or harmful events ...
Registries may be created to measure quality of care. The Institute of Medicine defined quality as “the degree to which health services for individuals and populations increase the likelihood of desired health outcomes and are consistent with current professional knowledge.” Quality-focused registries are being used increasingly to assess differenc...
Many registries will be developed to serve more than one of these purposes. Registries developed for one purpose may also be modified to serve additional purposes as the research, practice, or policy environment changes. While registries often serve more than one purpose, their original or primary purpose generally guides their design and, as a res...
Even limited to the definitions described above, the breadth of studies that might be described as patient registries is large. Patients in a registry are typically selected based on a particular disease, condition (e.g., a risk factor), or exposure. This User’s Guide uses these common selection criteria to develop a taxonomy or classification base...
In the case of a product registry, the patient is exposed to a healthcare product, such as a drug or a device, or other potential risk factor (e.g., environmental or personal exposure). The exposure may be brief, as in a single dose of a pharmaceutical product, or extended, as in an implanted device or chronic usage of a medication. Device registri...
In the context of evaluating patient outcomes, another type of exposure that can be used to define registries is exposure to a healthcare service. Healthcare services that may be used to define inclusion in a registry include individual clinical encounters, such as office visits or hospitalizations, procedures, or full episodes of care. Examples in...
Disease or condition registries use the state of a particular disease or condition as the inclusion criterion. In disease or condition registries, the patient may always have the disease (e.g., a rare disease such as cystic fibrosis or Pompe disease, or a chronic illness such as heart failure, diabetes, or end-stage renal disease) or may have the d...
Complicating this classification approach is the reality that these categories can be overlapping in many registries. For example, a patient with ischemic heart disease may have an acute myocardial infarction and undergo a primary coronary intervention with placement of a drug-eluting stent and postintervention management with clopidogrel. This pat...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
The findings and conclusions in this document are those of the contributors and reviewers. The contributors and reviewers participated as individuals and not necessarily as representatives of their organizations. No statement in this document should be construed as an official position of any organization represented here. *Chapter Coordinator Pa...
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In summary, planning a patient registry involves several key steps, including articulating its purpose, determining whether it is an appropriate means of addressing the research question, identifying stakeholders, defining the scope and target population, assessing feasibility, and securing funding.
- 2020/09
increasing the focus on patients in registries including engaging with patients throughout the design and conduct of registries, methodological considerations for using digital health technologies, designing patient-centric studies, and building registry networks.
A patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s). Definition of Patient Registry
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related to: What are the different types of patient registries?Collect Disease Data, Improve Treatment, Save Time, Advance Research, And Engage Patients. Collect Clinical Data, Optimize Treatment Decisions, Run Studies, Engage Patients
